Sweet Nectar Society

 

PHOTOGRAPHY WITH A PURPOSE

J.Carlos : Stage 4 Lymphoma

J. Carlos was diagnosed on August 27, 2013 stage 4Lymphoma. He had five tumor throughout his body and immediately began chemotherapy. He is a tall and strong boy whose life changed completely. He had intense chemo for the first 10 months , lost his hair and ability to walk or do any activities. J.Carlos was admitted to the hospital about 8 times and stayed about 5 days straight each stay. It was very tough times but he stayed strong! In May of 2014 his scans showed no evidence of active disease! J.Carlos had continued chemo and is scheduled to finish in the fall of 2015.
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Photography by Carrie Anne Miranda and Brittany Wilbur

Remembering DeeVina

We remember the sweet DeeVina today and lift her family up with prayers of comfort.
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photography by Carina Dunmore

Emily : Neuroblastoma

Emily was diagnose with stage 4 neuroblastoma in November 2013. She endured 6 rounds of chemotherapy however, her cancer continued to spread to nearly all of her body. The treatment was extremely hard on Emily and caused damage to her heart. Emily is now on an experimental treatment and doing well.
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Annabelle : C.P., Seizure disorder, Dystonia, Developmental Disabilities, Restrictive airway disease, scoliosis, Osteopenia, repaired club foot

“Annabelle was abandoned in China when she was approximately 5 days old. She was fortunate to be placed in a Christian based group foster home in China.
The Lord placed adoption of a special needs child on my heart and I began the 2 year journey to bring Annabelle home. The road was long and hard, but the Lord provided everything I needed.
On April 1- 2013 Annabelle became my little girl. It was quite apparent that Annabelle had many more needs then she was diagnosed with in China. After spending 2 weeks in China we flew home and immediately went to CHCC where Annabelle spent her first week and a half in America. Annabelle was 7 years old and entered CHCC weighing exactly 20 lbs. Many many test were ran and a g-tube was inserted to give her the nutrition she needed. She was given many new diagnosis and our new journey began.
Once released from the hospital Annabelle began to bond with her family of 4 older siblings. She has grown closed to her mama and her 2 brothers Nathan and Matthew as well as her 2 sisters Erica and Jessica.
Annabelle has had numerous admissions to CHCC since coming home, but I am happy to say she has been out of the hospital now for 2 and 1/2 months!!
The biggest challenge that Annabelle deals with on a daily basis is her Dystonia. Dystonia is a painful condition that has no cure. Although not life threatening Annabelle suffers daily with extremely painful mussel spasms in her neck and upper body.These spasms are so strong they twist her body to the point of her screaming out in pain. Unfortunately they effect her more as she gets tired and through out her sleep which wake her up. She is currently being referred to a specialist who deals with children with this condition.
Besides the Dystonia Annabelle also has an un diagnosed lung condition that has left Doctors scratching their heads. She has had test after test and medication after medication, but Annabelle still has two lung cavitations in her left lung that cause her to have pneumonia. Through the hard work of her pcp Annabelle is now doing better and is being refereed on to UC Davis to get another opinion on what might be causing this.
Annabelle is so much more then all of these diagnosis, her personality is so sweet and her laugh is contagious. She loves to be in the mix of what ever is going on and is quite the social butterfly. Although she can not speak a word she speaks through her personality and shortly after spending time with her you will understand what she wants. She loves going to school and her special needs daycare. Annabelle enjoys church, shopping and going to the park. Her favorite movies include Stewart Little, the original Charlie and the Chocolate factory, Alvin and the Chipmunks and the Veggie Tale movies. Annabelle is irresistible and everyone who spends time with her loves her to pieces. I can not imagine my life without her.”
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photography by Jennifer Eileen Photography

Kylee : Hydrocephalus, Cerebral Palsy, Developmental Delay

Kylee was born at 27 weeks gestation and only weighed 2 lbs 4 oz. She had heart surgery at 1 day old to close a hole in her heart. She developed grade 3 brain bleeds and required a shunt to be placed. By 10 months old she had had 4 shunt surgeries. Kylee acquried a staff infection, spinal menegitis, and a rare yeast infection in her shunt. Kylee has overcome so much and is currently doing great! Kylee is not defined by cerebral palsy, hydrocephalus or delays- she is smart, cheerful and has a great sense of style (she wanted to wear the pink shirt and sparkle shoes)!

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Remembering Anthony

Our thoughts and prayers continue to be with Anthony’s family. Anthony was a polite, charming and wonderful boy who brought love and happiness to his family. He enjoyed being in 6th grade and hanging out with his family and friends.
Anthony began had a pain in his shoulder, and began getting sick with fevers during the summer of 2014. Doctors first believed he had a fracture on his shoulder but he was then sent to a specialist and it was determined that Anthony had Hepatocellular Carcinoma, liver cancer, and it had metastasized to his shoulder bone. For three months Anthony received chemotherapy and radiation at UCSF but his cancer was non-responsive to the treatment. It was found that Anthony was Alpha-1 Deficient and there was no treatment available to cure his cancer.
Anthony was able to go home on hospice care where he passed away surrounded by family. Today we remember this kind hearted boy.
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photography by Brittany Wilbur

Carson : Autism

Meet Carson. His smile just brightened our day and we hope it did yours too! Please join us in returning the joy and wish Carson an awesome day as well!
1 in 68 American children are on the autism spectrum. We feel it is extremely important to help educate and bring awareness to autism.
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photography by Stephanie Ryan Photography

Aliyah : Down Syndrome

“Aliyah was diagnosed with trisomy 21 and multiple heart defects two days after birth. Because we had no indication that there were any probable issues, we were a bit overwhelmed to say the least. After about two years of specialists, home visits, and sleepovers at Children’s Hospital, Aliyah began to blossom like we couldn’t have foreseen. Her heart defects began to close and her health continues to improve each year. Her life has reflected a continual defiance of stereotypes and imposed limitations. God has graced her with a determined spirit that has a love and curiosity for the world around her. She has taught us to love, accept, and cheer on each moment as it comes and to stand in awe of God’s hand in her life.” written with love from Aliyah’s family.
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photography by Stephanie Ryan Photography

Krissy : Spina Bifida

Krissy is your typical toddler with tons of energy, bright eyes, and a smile that warms your heart in an instant. Doctors told Krissy’s parents that she would not be mobile due to her Spina Bifida. But this powerful little girl proved them wrong! She’s a mighty fast crawler, she is speedy with her walker, plus she has a really cool wheelchair that she gets to push herself around in. Mobility is not a problem for her! Krissy is super spunky and absolutely wonderful.

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Photography by Jennifer Eileen Photography

Emma : Aicardi Syndrome

Emma was born with Aicardi Syndrome; a rare genetic neurological disorder in which the structure that connects the two sides of the brain is partly or completely missing. Emma has a very special bond with her family and responds to her parents in a way that she does not respond to other people- Emma is their ray of sunshine. This sweet family is constantly on the go- regulars at the movie theatre, walking the mall, and Emma’s dad run’s marathons with Emma.
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photography by Stephanie Ryan

Devanee : Acute Lymphoblastic Leukemia

Devanee was diagnosed a month after she turned 2 in June 2012. She was admitted to Childrens Hospital Central California and immediately began treatment. Devanee continues to show her amazing strength throughout her chemo. Devanee loves to dance and sing and dress up like a princess. She is always smiling and has a very happy spirit. We hope that she continues to do well with her treatments and beat this cancer.

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photography by Jess Cadena

 

Session Info

SWEETIE SESSION

•A free photography session

•A digital gallery of images

•A keepsake book

•A platform to raise awareness

•Story shared for support

PATIENT SPOTLIGHT SESSION

Provides documentary type photography session to patients currently admitted to the hospital.

•A digital gallery of images

•A keepsake photo

FOCUS SESSION

Portrait session events designed to raise awareness to a specific diagnosis, build community, and celebrate Sweeties.

•A digital gallery of images

•A keepsake photo

(559)408.5969 | info@sweetnectarsociety.org

Sweetly rooted in California