Emma was born with Aicardi Syndrome; a rare genetic neurological disorder in which the structure that connects the two sides of the brain is partly or completely missing. Emma has a very special bond with her family and responds to her parents in a way that she does not respond to other people- Emma is their ray of sunshine. This sweet family is constantly on the go- regulars at the movie theatre, walking the mall, and Emma’s dad run’s marathons with Emma.
photography by Stephanie Ryan
