Sweet Nectar Society

 

PHOTOGRAPHY WITH A PURPOSE

Silas : Rubinstein-Taybi Syndrome

Meet Silas!
Silas was born at a healthy 8.4 lbs. His mom says this was the only time in his life he has had chubby cheeks largely due to the fact that Silas has had eating problems from day one. For the past five years he has baffled many doctors with his numerous issues resulting in him being frustratingly “undiagnosed” up until this year. It was a huge relief for Silas’s family when he finally received an actual diagnosed with Rubinstein Taybi Syndrome, “a condition characterized by short stature, moderate to severe intellectual disability, distinctive facial features, and broad thumbs and first toes. Additional features of the disorder can include eye abnormalities, heart and kidney defects, dental problems, and obesity.” Silas is happy, oozes joy out of every fiber of his body and he’s healthy. His family feels blessed. Silas may not be a big talker but he gives the BEST hugs ever!!!
Please join Sweet Nectar Society in sending Silas some love!
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Thank you McKenzye Anker Photography for hanging out and snapping these shots of Silas!

Session Info

SWEETIE SESSION

•A free photography session

•A digital gallery of images

•A keepsake book

•A platform to raise awareness

•Story shared for support

PATIENT SPOTLIGHT SESSION

Provides documentary type photography session to patients currently admitted to the hospital.

•A digital gallery of images

•A keepsake photo

FOCUS SESSION

Portrait session events designed to raise awareness to a specific diagnosis, build community, and celebrate Sweeties.

•A digital gallery of images

•A keepsake photo

(559)408.5969 | info@sweetnectarsociety.org

Sweetly rooted in California