Noah is a sweet boy who loves science experiments. Noah was diagnosed with his brain tumor at the age of 2 and a half. Due to the location, and that it has nerves and fibers growing throughout it, it is something he will always have to deal with. Noah has weakness of his right side, coordination problems, sleep apnea, swallowing issues, and many other potential issues caused by the tumor. He has undergone countless MRI’s, surgeries, sleep studies, and chemotherapy. Since ending his chemotherapy in August of 2013, his scans have shown tumor growth, edema, and risk of hydrocephalus. Over the summer of 2014 Noah actually developed hydrocephalus and required a shunt placement. He was also intubated and on a ventilator for weeks. Noah still requires a trach and night time ventilator support. We pray for comfort and strength for Noah and his family.

photography by Brittany Wilbur