We first met brothers, Michael and Mac in 2012 around the time they were both diagnosed with Duchenne Muscular Dystrophy. We are very happy to see them smiling and doing well. Michael and Mac are currently participating in a clinical trial with a medication called Eteperlison. This clinical trial is a confirmatory trial to give more data to the FDA to be able to get a new drug application. This medication of weekly IV’s for the rest of his life that will change the disease to Becker’s Muscular Dystrophy which will give Michael a much better quality of life and a longer lifespan.
Please continue praying that the FDA will approve this life changing drug- This family is proof that the drug is a powerful fighter against the harsh symptoms caused by duchenne muscular dystrophy.
Photo taken soon after the boys were diagnosed with Duchenne muscular dystrophy. 2012
Photography by Brittany Wilbur