Madelene :: Axonal Peripheral Neuropathy

Madelene’s parents feels blessed each day they have their family together. Mady was diagnosed with axonal peripheral neuropathy and recently hospitalized for chronic lung disease. During her hospitalization Mady was intubated, and two days later she stopped breathing. This was her families worst nightmare, but thankfully doctors and specialists at Children’s Hospital Central California moved quickly giving this sweetie a tracheostomy, feeding tube and ultimately saving her life. Madelene continues to go to physical therapy in order to improve and maintain her muscle strength. Madelene is able to raise her hands and legs against gravity which is an amazing accomplishment for Miss Mady.