Mac was diagnosed with Duchenne Muscular Dystrophy on January 6, 2012. Up to the point of his diagnosis with DMD Mac went through numerous blood draws- but he was a brave little boy and never cried during the process. His extremely elevated CK (liver) enzymes made it clear to the doctors that something was going on with his muscles. A liver biopsy was done, followed by DNA testing, It was at this time Mac was diagnosed with Duchenne Muscular Dystrophy.
DMD is a non-curable and fatal, genetic disease. Mac’s loved ones hold onto the hope that a cure will become available in the near future, but in the meantime, their ultimate priority is to get Mac the best care available, in order to give him the best quality of life possible.
Dr. Brenda Wong has dedicated her life to researching and developing treatment for Duchenne Muscular Dystrophy patients. Mac’s family hopes to meet with Dr. Wong in Cincinnati, Ohio this summer to learn more of his disease. Before this can be made possible they will need to raise $4,500 to cover costs.
Please consider opening your hearts to help make a life changing difference for Mac. Donations can be made to Sweet Nectar Society for Mac.
Photography by Brittany Wilbur
Clothing by Espi's Kids
Music: Third Day, Love Song