Lilianna :: Congenital Muscular Dystrophy SYNE 1 gene

Meet Lilianna! Lilianna was born with a rare form of Congenital Muscular Dystrophy SYNE 1 gene. For the first five and a half years of Lilianna’s life she went through numerous tests, therapies and equipment without having a specific diagnosis. She was considered severely hypotonic and failure to thrive. But she continued to fight through her first year of life and defied the doctors expectations. She crawled at the age of 23 months and after assistance of a Kid walk and K-walker she miraculously got up one Sunday afternoon at 3 years and one month and walked on her own. She has never looked back. God has given her a strong, stubborn personality that has overcome her physical weaknesses.
Join Sweet Nectar Society in encouraging sweet Lilianna to keep on breaking through others expectations!