Sweet Nectar Society

 

PHOTOGRAPHY WITH A PURPOSE

Kylee :: 15q24 Micro deletion Syndrome

Meet Kylee!

Kylee is the sweetest and happiest little girl! She loves the beach, bubbles, Peppa Pig and she is a huge fan of her sister! Kylee loves animals, especially horses and is a proud horseback rider at “The Heart Of The Horse Therapy Ranch”. Kylee attends physical, occupational, and speech therapy, along with visits to other specialists on a regular basis. She is currently learning to walk, talk and is becoming a social butterfly! When Kylee was born she was not thriving, after multiple tests and scans she was diagnosed with a vary rare genetic disorder. Kylee is only the 19th person in the world to be diagnosed with 15q24 micro deletion syndrome. Kylee has had 10 different surgeries and will continue to have more in the future. She was born with several birth defects including her brain, spine, heart, lungs, intestines, and other vital organs. She was born with a terrible defect in her diagrams that allows her stomach and intestines to protrude into her chest this has caused her heart to live on the right side of her chest and one lung not to fully develop.

Session Info

SWEETIE SESSION

•A free photography session

•A digital gallery of images

•A keepsake book

•A platform to raise awareness

•Story shared for support

PATIENT SPOTLIGHT SESSION

Provides documentary type photography session to patients currently admitted to the hospital.

•A digital gallery of images

•A keepsake photo

FOCUS SESSION

Portrait session events designed to raise awareness to a specific diagnosis, build community, and celebrate Sweeties.

•A digital gallery of images

•A keepsake photo

(559)408.5969 | info@sweetnectarsociety.org

Sweetly rooted in California