Kole is an energetic, fun loving 6 year old who has a blast playing with his Nurf guns! He is a fan of hunting and like we mentioned… NURF! Apart from being the cutest little man ever- he might just be one of the strongest too. He has overcome some major obstacles and is currently soaking in all life has to offer!
Kole was diagnosed two days after he was born with hypoplastic left heart syndrome and had his first of four open heart surgeries at a week old. After his last surgery when he was 3, his body was in rapid decline.  Valley Children’s sent his family to Stanford in hopes of more options for Kole. Specialists at Stanford said Kole would need a heart and lung transplant, and that his odds of surviving were not good. The other option was putting Kole on a medical trial for a new medication. This treatment had not been used by Stanford on any other children so Kole became their pioneer. The medication turned his life around, He is now thriving!

With his pump tucked in his back pocket, he ran around like a ball of energy while showing me his Nurf shooting skills! Kole is such a fun little boy and I am so happy to finally get to meet him.

UPDATE:

Since his session Kole has been through some major changes for the best! His team of doctors were able to stop the continuous infusion pump he had been wearing since he was three. That was a medicine that helped relax his blood vessels, and also helped regenerate new ones. They also started a new medicine to see if he is able to sustain with this new regiment.

For the first time Kole was able to go to a water park. His mom shared with us that you don’t realize how much you can’t do when you have a machine attached, until it’s all of a sudden not attached. He was able to act like a normal boy! No one gave him side eye because his mama was holding a plastic packaged pump. And no one asked him why he had to wear it, or what was wrong. He just got to play!

Kole and his family are taking life day by day. Kole is still not in the clear but he is hopeful. Kole really wants to play soccer this fall but it is all depending on the results from his upcoming tests to see his progress. Lets keep this little guy in our thoughts!