Evangeline :: Congenital Muscular Dystrophy SYNE 1 gene

Meet Evangeline! After a long road to finding a diagnosis for Evangeline’s sister Lilianna, there was no question that Evangeline shared the rare form of Congenital Muscular Dystrophy SYNE 1 gene with her sister. Evangeline continues to work on sitting on her own and working on getting her to crawl. Both girls keep busy with Physical Therapy, Occupational Therapy and other doctors appointments. Our family has been blessed with so many wonderful therapists, teachers and doctors who have loved, supported and encouraged our family throughout these past 6 1/2 years. Our girls are a precious gift and blessing to our family.
Please Join Sweet Nectar Society in cheering on Sweet Evangeline!