Bryer was born with Total Intestinal Aganglionosis. An extremely rare disease occurring in less than one in a million children. He lacks nerve cells in both his large and small intestine. Because of this he cannot eat and pass food like we do. He survives by receiving IV nutrition through a central line placed in his heart, has a gtube, and a jejunostomy with 15cm of small bowel. He is a fighter, having 4 major abdominal surgeries. His parents were encouraged to withdrawal all care when Bryer was born. They could not let that happen. Together they fight for their strong boy, researching and finding the best care possible.
photography by Carrie Anne Miranda