Live Sweet + Love All

PATIENT SPOTLIGHT :: DAMON

 
PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: NICHOLAS

PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA & BRITTANY WILBUR

PATIENT SPOTLIGHT :: ROBERTO


PHOTOGRAPHY DONATED BY BRITTANY WILBUR

PATIENT SPOTLIGHT :: LESLY


PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: ROMAN

PHOTOGRPAHY DONATED BY CARRIE ANNE MIRANDA

Jocelynn :: Spina Bifida Occulta

Meet Jocelynn!

Joselynn is a beautiful, caring, energetic young girl. She loves her friends, family and living life to the fullest.
Joselynn was diagnosed with Spina Bifida Occulta when she was three years old- after experiencing G.I. issues her entire life.
Please join Sweet Nectar Society in encouraging Jos!

PHOTOGRAPHY DONATED BY AMBER SCHNEIDER

Evangeline :: Congenital Muscular Dystrophy SYNE 1 gene

Meet Evangeline! After a long road to finding a diagnosis for Evangeline’s sister Lilianna, there was no question that Evangeline shared the rare form of Congenital Muscular Dystrophy SYNE 1 gene with her sister. Evangeline continues to work on sitting on her own and working on getting her to crawl. Both girls keep busy with Physical Therapy, Occupational Therapy and other doctors appointments. Our family has been blessed with so many wonderful therapists, teachers and doctors who have loved, supported and encouraged our family throughout these past 6 1/2 years. Our girls are a precious gift and blessing to our family.
Please Join Sweet Nectar Society in cheering on Sweet Evangeline!

PHOTOGRAPHY DONATED BY Angela Eller

Lilianna :: Congenital Muscular Dystrophy SYNE 1 gene

Meet Lilianna! Lilianna was born with a rare form of Congenital Muscular Dystrophy SYNE 1 gene. For the first five and a half years of Lilianna’s life she went through numerous tests, therapies and equipment without having a specific diagnosis. She was considered severely hypotonic and failure to thrive. But she continued to fight through her first year of life and defied the doctors expectations. She crawled at the age of 23 months and after assistance of a Kid walk and K-walker she miraculously got up one Sunday afternoon at 3 years and one month and walked on her own. She has never looked back. God has given her a strong, stubborn personality that has overcome her physical weaknesses.
Join Sweet Nectar Society in encouraging sweet Lilianna to keep on breaking through others expectations!


PHOTOGRAPHY DONATED BY Angela Eller

Isabelle :: Pre-B Cell Acute Lymphoblastic Leukemia

Meet Isabelle! Izzie was diagnosed with Pre-B cell Acute Lymphoblastic Leukemia in April 2016. She has been going through intense treatment but has remained a happy little girl with lots of smiles to share with the world.

PHOTOGRAPHY DONATED BY MCKENZYE ANKER

Kati :: Down Syndrome

Meet Kati! Kati is kind, strong, happy young lady. She is sweet yet clear on her likes and dislikes, and has immeasurable compassion towards others. Kati loves to sing and is a major fan of musicals like Phantom of the Opera and West Side Story. Kati’s mom says despite going through numerous surgeries on her knees, removal of a tumor, a 9.5 hour surgery for scoliosis, in addition to several other procedures, Kati remains positive, strong and the way Kati handles each situation has made those around her stronger.

PHOTOGRAPHY DONATED BY Amanda Britz-Alvares.

JONATHAN :: hemiplegic cerebral palsy

Meet Jonathan:
“Jonathan is an adventurous little guy. Right after he turned 2 he was diagnosed with hemiplegic cerebral palsy. Even though he is quite high functioning, his left side is significantly weaker. Doctors think that he had a stroke shortly after birth. We are not quite sure what caused the stroke, but he had a lot of difficulty breathing when born. He was in the Kaweah Delta NICU for a day then transferred to Valley Children’s Hospital where he stayed for 3 more days.
Jonathan is currently in the local Bright Start program and has made great strides physically, verbally, socially, and cognitively. He also does physical therapy and occupational therapy once a week. Both Dan and I are thrilled with how far he has come and continue thanking God daily for this little boy that He gave us.”
~ from his mom Rachael


PHOTOGRAPHY DONATED BY Mckenzye Anker

Sosie :: Acute Lymphoblastic Leukemia

Meet Sosie. In July 2015 Sosie had been experiencing low grade fevers and tiredness. She was taken to the doctors where they did a urine and finger prick tests, as soon as the results came in her doctor sent them to the Valley Children’s oncology team. It was confirmed the same day that Sosie had Acute Lymphoblastic Leukemia. She began treatments immediately. Sosie has had several extended hospital stays due to infections and a mass in her lung which have since all cleared.
Sosie has a gentle and caring personality. Her family is extremely important to her. She is an excellent cheerleader for her siblings, she loves to root them on at their sporting events. Sosie loves to sing, dance and watch her favorite movie, ‘Little Rascals’ and she is never short of giving extra love to others.