Meet Amia!
“My daughter Amia is a twin. She was diagnosed with hydrocephalus during the 4th month of pregnancy. When she was born they realized she had more than that. An MRI was done and they found out she also has Agenesis of the Corpus Callosum. She had emergency transfer to UCSF where she had a VP shunt placed. Since then she has been diagnosed with multiple conditions and sees multiple specialist. She has developmental delayed, eye issues, Gerd, tortacollis, 2p22.3 gene publication, low muscle tone, short stature, Airway reactive disease, and Tracheomalacia, with possible Sleep apnea and hormone issues. In May 2017 she was diagnosed with SOX2 Anophathalmia Syndrome, which was done thru genetics. It’s very rare and is the reason to everything else she has. The main issues she has been having lately is lung issues. With all that she is an extremely happy child and very loved.”
Please join us in sending some sweet thoughts Amia’s way! 

Sweet Sessions donated by Carina Dunmore