Addie has a rare chromosome deletion for which there is very limited medical information available. This has caused a number of medical challenges including mitochondrial deficiencies which affect a number of systems. Adaliese’s GI function is most affected- she is now fed via a J tube connected directly to her lower intestine 24 hours a day. Her liver does not function correctly so she struggles with hypoglycemia and she has respiratory issues. Adaliese has developmental disabilities and is generally non-verbal.
This Sweetie was such a joy to be around and we are so thankful to have the opportunity to share her beautiful smile with the world. Join us in sending some love her way!!!!

 

photography by Brittany Wilbur