Sweet Nectar Society

 

PHOTOGRAPHY WITH A PURPOSE

Hendrix :: Acute Myeloid Leukemia (AML)

Hendrix is doing great.  He is running around and playing with Azera daily.  His favorite things to do are ride his balance bike and swim in the pool (and play with Tonka trucks and Hotwheels).  He loves Lightening McQueen and Finn McMissile from Cars movie.  His favorite color is yellow, favorite food is PB&J and chocolate milk.  He has two favorite movies right now-Ice Age and Lion King.  He is also very fond of his i-pad games and puzzles.  His absolute favorite thing to do is play outside.  He would play with his cars and trucks in the mud and dirt all day if we let him.  I think the pool is a close second now : )

Hendrix has Acute Myeloid Leukemia (AML) subtype M7.  It is a very rare and aggressive form of leukemia.  This type effects the cells that make platelets in the blood.  The platelets are the sticky cells that stick together to form clots when you are cut or bleeding. There are only about 50 cases or less a year in children in the United States every year.  He has seen the specialist here at Children’s Central Valley and at UC San Francisco.  Because this form is so aggressive, he is a candidate for a bone marrow transplant.  He was put on the National Bone Marrow Registry on April 26, 2012 and so far a match has not been found.

To register to become a bone marrow donor, people can get a FREE simple cheek swab done.  Local people can get this done at any Central California Blood Center or people can have a kit sent to them in the mail.  People can sign-up to be a bone marrow donor at getswabbed.org or bethematch.org.  You have to be between ages 18-60 and in good general health.  There are a lot of medical issues that would not qualify you as a donor, but both websites have the medical questions.

photography by Carrie Anne Miranda and Brittany Wilbur

music by rob thomas :: little wonders

Session Info

SWEETIE SESSION

•A free photography session

•A digital gallery of images

•A keepsake book

•A platform to raise awareness

•Story shared for support

PATIENT SPOTLIGHT SESSION

Provides documentary type photography session to patients currently admitted to the hospital.

•A digital gallery of images

•A keepsake photo

FOCUS SESSION

Portrait session events designed to raise awareness to a specific diagnosis, build community, and celebrate Sweeties.

•A digital gallery of images

•A keepsake photo

(559)408.5969 | info@sweetnectarsociety.org

Sweetly rooted in California