Alvino :: Unspecified delay in development, acute tracheitis, leukodystrophy

Alvino is the cutest little guy! He smiled big and loved getting tickled during his photoshoot. He would try to shy away but he just could not resist looking right at the camera and his little closed off grin quickly turned into and explosion of pure joy!

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PHOTOGRAPHY DONATED BY BRITTANY WILBUR

LOLA :: Hypoplastic Right Heart Syndrome

Angelique Lola!

“Our daughter was born with Hypoplastic Right Heart Syndrome. She has under gone two open heart surgeries and is preparing for a third soon. She will be two years old on October 22, she is so full of life and brings her whole family and everyone she comes into contact with so much joy!!”

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PHOTOGRAPHY DONATED BY BRITTANY WILBUR

PATIENT SPOTLIGHT :: EMILY

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: ALIYAH

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: TEAH

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: EZRA LIONHEART

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

Paulette :: Trisomy 13

“From the moment Paulette was born doctors did not know what was wrong with her. Doctors noticed the obvious, her extra toes and fingers. She was immediately taken to NICU due to her low blood sugar levels and her inability to suck from bottle. It was then shared with me, she could not any formula down because she had a cleft palate. She was then put on NG tube after her first week in the NICU and she was diagnosed with Trisomy 13. Doctors and nurses just keep repeating they did not know how long or if she would live. After a long month which seemed like forever, she got stronger and was able to live without the IV’S, breathing tubes. A week later I was finally able to bring her home on hospice concurrent home care. I am proud to say my lil trooper is doing well and will soon be getting her hearing aids in when she is 6 months old. It has been a struggle for both Paulette and our family due to her disability, the countless sleepless nights and pain, but we continue to fight. Her doctor says that out of his 30 years of practice she is the strongest trisomy 13 he has ever seen. Besides all of her stuggels, all that she is still here with us by the grace of GOD.”

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PHOTOGRAPHY DONATED BY BRITTANY WILBUR

Vivi :: Hypoxic-Ischemic Encephalopathy (Brain injury), Quad Dystonic Cerebral Palsy, Cortical Visual impairment, Developmental Delays and is nonverbal

“Vivianna is charismatic little girl who is loved dearly by her family and everyone who has met her! With a new baby brother in the picture, she is definitely rocking the big sister role. She has settled into that role with the same amount of grace as just about everything that has come her way. Vivi has this smile that just lights up the room and is honestly so contagious. You can’t help but smile when you meet her. She is full of tons of love, enormous strength and personality for miles.
Vivi was in no hurry to come into the world and was born at 41 weeks. However, during her delivery there were complications. She went into distress and an emergency caesarian was needed. As a result, she suffered brain damage and almost didn’t make it through the night. It was then we discovered what a strong little girl she is! She was surrounded with such abundance of love from her family during her NICU stay and after over a month in the hospital she was finally able to come home.
Vivi has been diagnosed with Hypoxic-Ischemic Encephalopathy (Brain injury), Quad Dystonic Cerebral Palsy, Cortical Visual impairment, Developmental Delays and is nonverbal. Due to her condition, she battles illness constantly. At the age of 4 she went through major hip surgery. Like everything she does in life, she handles these things like a true champ.
She may be nonverbal but boy does she have a lot to say! When she’s not melting hearts with that smile of hers, she’s either shopping with momma or watching her favorite TV shows. Nothing makes her smile like an episode of Sesame Street or Family Feud besides grandpa of course. With all the things Vivianna goes through on a daily basis she has definitely taught so many to be more humble. She has given me the strength to be the best parent I can be for her. Vivi has brought so much joy into our lives and in the lives of those who know her. We are immensely proud of her and love her beyond the stars and back.”

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PHOTOGRAPHY DONATED BY BRITTANY WILBUR

PATIENT SPOTLIGHT :: COLTON

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

PATIENT SPOTLIGHT :: ISABEL

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PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA

Michael :: Down Syndrome, congenital heart defects

Meet Michael!
Michael was born prematurely at 27 weeks. He was diagnosed with Down syndrome and congenital heart defects. He has bilateral club feet and is deaf in his left ear. Michael has had multiple surgeries. Michael plays the harmonica and has a love of song and dance.
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PHOTOGRAPHY DONATED BY N. GODINEZ PHOTOGRAPHY

PATIENT SPOTLIGHT: JAXON

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PHOTOGRPAHY DONATED BY CARRIE ANNE MIRANDA