Kylee :: 15q24 micro deletion syndrome

Meet Kylee!
Kylee is the sweetest and happiest little girl! She loves the beach, bubbles, Peppa Pig and she is a huge fan of her sister! Kylee loves animals, especially horses and is a proud horseback rider at “The Heart Of The Horse Therapy Ranch”. Kylee attends physical, occupational, and speech therapy, along with visits to other specialists on a regular basis. She is currently learning to walk, talk and is becoming a social butterfly!
When Kylee was born she was not thriving, after multiple tests and scans she was diagnosed with a vary rare genetic disorder. Kylee is only the 19th person in the world to be diagnosed with 15q24 micro deletion syndrome.
Kylee has had 10 different surgeries and will continue to have more in the future. She was born with several birth defects including her brain, spine, heart, lungs, intestines, and other vital organs. She was born with a terrible defect in her diagrams that allows her stomach and intestines to protrude into her chest this has caused her heart to live on the right side of her chest and one lung not to fully developed.

Please join Sweet Nectar Society in encouraging our Sweetie!

kylee-06 kylee-07 kylee-15 kylee-20 kylee-31 kylee-34 kylee-37 kylee-27
Thank you Derksen Photography for donating this Sweet Session and Cavelle Kids of Clovis for providing this sweet outfit for Kylee!

 

Xavier :: Heart Defect, Brain Damage due to lack of oxygen

Meet Xavier! Xavier is a happy go lucky, smiley little guy who brings a lot of joy to his family. Xavier was born with a heart defect called corrected transposition of the great blood vessels. He had his first open heart surgery at 6 months to put in a PA band, a ruber band to stop his heart from leaking. A year later he had another open heart surgery to put in a pace maker, this surgery lasted over 15 hours. While recovering in the ICU he stopped breathing for 6 minutes, at this time he was in full code blue but doctors were able to revive him. Xavier remained in ICU for about 2 months followed by another 3 months in the rehab unit where Xavier leaned to walk and talk again.
Xavier was able to go home with an IV. During his appointment to get the IV removed Xavier stopped breathing for 1 minute and he did not get blood or oxygen to his brain. Xavier’s family have been told that he will never talk, walk or be the same again. It is unknown if he can see. His family is thankful he is able to hear and communicate with sounds.
Please join Sweet Nectar Society in giving Xavier some extra love today! Keep on keeping on little guy! You are so loved!
xaverier xavier3 xavier2 xavier1
Huge thank you to one of our newest Sweet Photographer, N. Godinez Photography for providing Xavier and his momma a beautiful session! We are excited that you have joined our team!

FOREVER IN OUR HEARTS :: ISMAEL

Sweet Ismael will forever be in our hearts.

Ismael-9b Ismael-12 Ismael-13 Ismael-14b

photography donated by Jess Cadena

ROMAN :: TRISOMY 21

Meet Roman! Roman is an energetic, enthusiastic, loving little boy with the most amazing smile!!!! Roman was born with Trisomy 21, but he does not let anything slow him down- seriously, this kid is fast! He took us for a run during his session and was sure to slip in some belly laughs and smiles in between his laps! It was a super quick, super fun session!
Please join Sweet Nectar Society and cheer on Roman! Roman_2016__32 Roman_2016__53 Roman_2016__45 Roman_2016__41 Roman_2016__28 Roman_2016__24 Roman_2016__17 IMG_0444

PHOTOGRAPHY DONATED BY BRITTANY WILBUR

LEVI :: DOWN SYNDROME

Meet Levi! Levi is a very happy boy with a wonderful personality and an adorable smile! He loves munching on tasty treats and trying new foods.
Levi’s family was told he had down syndrome after he was born, this diagnosis changed their world. Levi had open heart surgery when he was 3 months old. He is now doing well and every day is an adventure!
Please join Sweet Nectar Society in waving hi to Sweetie Levi!
SNSLevi-4 SNSLevi-8 SNSLevi-11 SNSLevi-16 SNSLevi-21 SNSLevi-31 SNSLevi-42 SNSLevi-38 SNSLevi-35

A sweet thanks to Stephen Bryant for providing this Sweet Session to Levi!

ADAM :: DOWN SYNDROME

Meet Adam! Adam is quite the charmer and he knows it- during his session he was full of smiles and plenty of giggles. Adam is a young man with Down Syndrome, however, DS does not define him. Adam is independent and very active. He has participated in special olympics in the throwing and running events.
We will continue to cheer on Adam in all that he sets his mind to! We believe you can do it Adam!!!!

Adam_2016__41 Adam_2016__43 Adam_2016__46 Adam_2016__31 Adam_2016__24 Adam_2016__27 Adam_2016__22 Adam_2016__16 Adam_2016__14 Adam_2016__2 Adam_1 adam_2

PHOTOGRAPHY DONATED BY BRITTANY WILBUR

MACY :: DOWN SYNDROME, CONGENITAL HEART DEFECT

Meet Macy! Macy was born with down syndrome and congenital heart defect. Soon after birth, Macy had open heart surgery to repair the defect and has been thriving ever since. She loves riding the bus and going to school. Her family couldn’t be more in love and proud of Macy. They say she gave them the life they never knew they wanted and wouldn’t trade it for the world!
Please join us in cheering on the sweet girl! We hope you have a wonderful day Macy! 
 

macySNS-34 macySNS-38 macySNS-37 macySNS-36 macySNS-17 macySNS-13 macySNS-14 macySNS-11 macySNS-06
A very sweet thank you to Cori with Derksen Photography and Cavelle Kids for hooking Macy up with this Sweet Session and outfit!

Jazlynn :: Ewings sarcoma

Meet Jazlynn! Jazlynn is a stunningly beautiful little girl with a bright smile and shinning personality. Jazzy was diagnosed with Ewings Sarcoma and underwent 17 rounds of chemotherapy.
Jazzi finished treatment and is now CANCER FREE!
We send our continued love and support to Sweet Jazzi!Jaz_2016__105 Jaz_2016__76 Jaz_2016__65 Jaz_2016__53 Jaz_2016__50 Jaz_2016__43 Jaz_2016__20 Jaz_2016__14 Jaz_1

PHOTOGRAPHY DONATED BY BRITTANY WILBUR

MATIAS & MARIO :: NON-VERBAL, CEREBRAL PALSY, DELAYED DEVELOPMENT

Matias
Matias and his twin brother Mario were born at 28 weeks. Matias weighed 1 pound 14 ounces at birth and required heart surgery, continuous oxygen and a colostomy bag for many months. He needed to stay connected to a monitor because he would stop breathing.
Matias is now three years old and such a sweet boy. Although he is non-verbal he is very expressive and able to communicate in his own way. He is starting to stand and walk with assistance. He can crawl around and continues to get stronger by attending physical therapy on a regular basis.
Matias is an absolute love! After his session was over Matias made it known he wanted get in my car and come home with me. Since I couldn’t fit another car seat, I settled for a big hug and managed to snap a picture with my two new buddies! 

MatiasMario_2016__6

Mario
Mario and his twin brother Matias we born at 28 weeks. Mario weighed 1 pound 9 ounces at birth and required heart and eye surgery. Mario needed to stay connected to oxygen for seven months before his lungs were strong enough for him to breath on his own.
Mario is now three years old and able to sit on his own and is starting to scoot around. He is still gaining strength to support himself and continues to attend physical therapy on a regular basis. Mario does not talk but is very expressive.
MatiasMario_2016__77

Please join Sweet Nectar Society in cheering on these sweet brothers! Big hugs to Mario and Matias!

MatiasMario_2016__50 MatiasMario_2016__34 MatiasMario_2016__28 MatiasMario_2016__18 MatiasMario_2016__20

PHOTOGRAPHY DONATED BY BRITTANY WILBUR

AVEREY :: CHARGE SYNDROME

Meet Averey Camille. Averey is a sweet and precious girl who was quick with her smiles during her sweet session. She completely melted my heart- seriously, look at that smile!!!! 
Avery was born with CHARGE syndrome, a genetic disorder compiled of various medical and physical conditions. Averey has had heart surgeries, has difficulty swallowing and G.I. issues. Averey is hearing impaired and has vision loss, as well as loss of smell.
Averey is extremely loved by her family. Please join Sweet Nectar Society in loving and encouraging this sweet little girl and her family.

averey_1 Averey_2016__91 Averey_2016__76 Averey_2016__71 Averey_2016__45 averey_2 averey

PHOTOGRAPHY DONATED BY BRITTANY WILBUR

FOCUS :: DOWN SYNDROME

3/21 is World Down Syndrome Day. A day to celebrate our friends with Down syndrome and spread the word that these individuals are not defined by their diagnosis!


What you should know about Down syndrome…

Down syndrome isn’t common. 1 in every 700 live births results in a child born with Down syndrome. Which means that someone with Down syndrome is incredibly special! Down syndrome is a third full or partial copy of the 21st chromosome in a humans DNA. Chromosomes are the tiny pieces of code in our body that tell us how we look, how we grow, and how our brain works. Which is why someone with Down syndrome may look and learn differently than you. More than anything else, you should know that someone with Down syndrome is more like you than they are different… they love sports, singing, dancing, music, reading, art, playing with friends, and most of all… love being included, accepted and appreciated for who they are as an individual. They are a person first; they are more than their diagnosis.

-DSACC, Down Syndrome Association of Central California


AVAava1 ava2 ava3 ava4 ava5

NATALIFOCUS_DS__57 FOCUS_DS__48 FOCUS_DS__46

NOAHNOAH NOAH2 NOAH3

OLIVERoliver oliver1 oliver4 olie7 oli6

FABIANf1 f2 f3 f4

ARIari1 ari2 ari3 ari4 ari5 ari6

VIOLETviolet1 violet2 violet3 violet4

MAKmak1 mak2 mak23

JACEjace jace2 jace3

EVERETTev1 ev2 ev3 ev4

MADDIEmaddie1 maddie2 maddie3 maddie4

KYLEky1 ky2 ky3 ky4

JAXjax1 jax2 jax3 jax4

JACOBjacob5 jacob1 jacob3 jacob34

GAGEgage1 gage_2 gage_6 gage_7

ANTHONYanthony1 anthony2 anthony3 anthony4

EMME ANNemme1 emme2 emme3 emme4 emme5

EMMAemma1 emma2 emma3 emma4

PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA & BRITTANY WILBUR

Jeffrey :: Autism, seizure disorder, Tourette’s syndrome

Meet Jeffrey! Jeffery has a very kind and gentle spirit. He is the helper of the family and such a loving boy. Jeffrey was welcomed into an amazing family who are dedicated to their passion for education and advocacy of special needs and transracial adoption (He is our other Sweetie Lila’s big brother).
Jeffrey has been diagnosed with mild/moderate autism. He has a seizure disorder and takes medication to help keep his seizures under control. Jeffrey also has Tourette’s syndrome. Tourette’s syndrome involves uncontrollable repetitive movements or unwanted sounds (also known as tics), such as repeatedly blinking the eyes, shrugging shoulders, or blurting out offensive words.
Jeffrey was a joy to photograph, he lead Carrie Anne around the park and showed her the art of tree climbing. 

JEFF JEFF1 JEFF3 JEFF5 JEFF6

PHOTOGRAPHY DONATED BY CARRIE ANNE MIRANDA